My Dear IRI Members,
I know that this is not related to the rail fanning stuff but is an message I want to convey. There is a drug called 'Spinraza' which is recently approved by FDA in USA. But it's not currently available in India. Also this drug costs around $375000 per annum which is an impossible task for a middle class family to arrange this medicine for their son/daughter. Therefore, in order to draw the attention of the Government of India to bring this drug to India at an affordable cost. I want all the members of IRI to sign this petition :-click here and give their best shot by changing the lives of the persons suffering from Spinal Muscular Atrophy....
more...
Thanking you
Sincerely
P.S. I'm also suffering from this fatal disease.